United StatesIf you’re suffering from a rare disease or chronic illness or a caregiver for someone who is, you’re not alone. Connect with other patients and caregivers, learn about your condition, and share your story on RareGuru. RareGuru is a free mobile app that connects caregivers, parents, and patients with similar rare diseases or symptoms. Take back control of your health and future by finding the resources and the social health group you need to thrive. Connect with knowledgeable and motivated patients and caregivers like you. Track your symptoms, share your diagnosis, learn more about your disease and help others through their healing process. Get support from people who share your disease. Find and show support for chronic diseases, depression, symptoms and more with a network of patients and caregivers. Share as much or as little about yourself and your condition as you’d like. Whether you have a chronic illness, newly identified disease or a mental disease, what you share with whom is your decision. Don’t let your disease isolate you from the world. Connect and learn together with RareGuru. RareGuru Features: Connect, Share & Network - Create a private or public profile sharing what information you’re comfortable with. - RareGuru matches you with other users who share a similar diagnosis or symptoms. - Filter your matches based on location, age, gender, and user type. - Message through private or group chats. - Safe and secure social networking. Symptom Tracker - Track symptoms and take notes to evaluate your condition. - Export data trends for sharing with doctors and specialists Rare Disease and Chronic Illness Database - RareGuru’s disease database contains up to 7,000 rare diseases and chronic conditions and more than 21,000 symptoms. - The disease database is regularly updated based on data from the United States Genetic and Rare Disease Information Center (GARD). - Diagnoses not yet in the disease database earn a unicorn icon to indicate the rarity. .Global Disease map - Search the global disease map to see where certain diseases are more or less rare. - Find out how many RareGuru users share your diagnosis in any location. Rare Charities - RareGuru spotlights organizations serving the rare disease community. - Users can select their favorite rare charities during onboarding. RareGuru helps connect and support those experiencing rare diseases. Download today and join us.
I'm almost in tears, this has been such a touching experience.
I've spent years with minor gripe that seemed just a bit abnormal for my age but I also wasn't the nicest to my body when younger so I dismissed them. I came to find Rare Guru through an article I read, and really thought nothing of it at first besides it being a neat idea and my own experience in tech and frustration about my medical issues. I've had a suspicion that I had something weird aka rare that was not being diagnosed. Well thanks to the article which feature this app and its founders, I asked for a lab test that probably nobody would ever have ordered because I don't fit the clinical profile. I mean, almost not at all. Turn out it's abnormal and highly suggestive of hypophosphatasia. There are 10s of thousands of people using this app, and the founders took time to talk to me through the app and even a video conference and provide me with lots of info since it is something they are familiar with. My mind is truly blown. I finally have some answers for decades long questions that I probably would not have ever found was it not for that article and the story of Heather, her daughter and the app they created. I know this review isn't really about the features of the app, but since I work in the internet tech space, let me just say that it's not the features and functionality or lack of bugs that make a great app. It's whether it is effective for its intended purpose. I am one fretful individual who has proved that truly is the core of this app. It has been proved effective and I get to join an exclusive club of about 500 out of 330,000,000 people with this diagnosis. Let that % sink in. I'm off to buy a lottery ticket now. Thank you, Heather, Bennett and family!
United StatesAmazing App
This app has solved so many problems for me. From connecting me to symptoms to helping me find a community, RareGuru has been a lifesaver.
United StatesDream come true
As someone with a rare disease that affected about 1 in 100,000 to 1 million people I’ve been looking for a platform to connect with others with the same thing and a place to track when my symptoms aren’t regular! If I could rate this 10 stars I would. Everyone needs to know about this app!
United StatesRareGuru Is A Must
Wow I love RareGuru. You select your diagnosis and or symptoms if you wanna list your symptoms, then you get a selection of connections based on the information in your profile. You can make the list of your symptoms public or private and there’s even a symptom tracker. There’s no newsfeed or posting. Once you send a connect request and it’s accepted you get to talk one on one. So it’s like a community of people who share your diagnosis or symptoms with one on one emotional support through those good and bad days. I’d highly download RareGuru cuz here on RareGuru you aren’t alone. If someone doesn’t share your diagnosis or symptoms that you know of, then download RareGuru and I promise there’s people out in the world. You just haven’t met them yet but on RareGuru you will.
United Stateshappy 2 find teens like me
This app is rlly cool and I was so relieved 2 find other teens like me! IDK that there was an app like RG!!!! It’s so cool and is very sleek and easy 2 use. It has helped me to DM other people going through the same stuff as me. I don’t feel so alone ⭐️ ⭐️ ⭐️ ⭐️ ⭐️
United StatesGenius!
As a healthcare professional I can’t say how much this app was NEEDED!!! So helpful on so many levels even if you don’t have a rare diagnosis. Thank you for bringing this into existence!
United StatesAn amazing resource
Finally an app that is extremely easy to use and allows you to choose between caregiver or patient. Love the community aspect of Rare Guru!
United States
Sleek, New Design
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