publisher
category
price
Freestore
Reviews
5 (1)
United States
Description
Patient-Driven Data for a Cure
The FOP Registry is the largest and most in-depth collection of FOP clinical and medical information and is independently operated by the IFOPA. The FOP Registry serves to help clinicians and researchers better understand FOP in order to accelerate the development and availability of disease-modifying therapies, and is also a great resource for practitioners to publish and help elevate awareness about this rare disorder. Participants’ contributions, like yours, help the Registry to fulfill our mission. Anyone living with FOP is eligible to participate by entering information every 6 months. Doctors can also participate in the Registry by entering in their patients’ clinical information. The IFOPA believes there is power in numbers, and the contributions of physicians and those living with FOP will provide a comprehensive insight into the disorder that will enable the community to further research efforts and opportunities to develop therapies.
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About
Bundle Id
com.difz.ifopa.appstoreMin Os. Version
11.0Release Date
Thu, Nov 14, 2019Update Date
Thu, Jun 22, 2023Content Rating
4+Has IMessage
NoSupport Watch
NoSupport Siri
NoFile Size
27.99MBHas Game Center
NoFamily Sharing
YesSupport Passbook
NoSupported Languages
EnglishSupport
What's New
version
1.3updated
11 months agoMinor Bug Fixes.
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